Well I was able to get my medication after having to drive 45 minutes there and back. The medication that I needed was Lo Dose HCG which is very important because I must start it on Day 3 which is tomorrow, yikes!
Today I just relaxed did some cleaning and watched one of my TV obsessions Walking Dead. I am a newbie to the series so I am binging on Netflix. It’s so good!!
In my previous video I mentioned about the underlying disorder that came up during our Genetic Testing for IVF. This is a process that you have to do but not required when doing IUI. Some testing doesn’t require more testing and some do. Of course our doctor and the clinical team feels that our disorder is a life threatening one and we have to do further testing during our IVF treatment.
The cost of this extra testing without insurance is $6,000 which doesn’t include the extra testing that both of our parents have to take as well. The genetic disorder that both of us are carriers of is called Cogenital Adrenal Hyperplasia. Below is a break down of the condition and what all it represents.
Congenital Adrenal Hyperplasia
Excessive urination of sodium, early, delayed, or absent puberty
As you know, CAH is an inherited genetic disorder that affects the adrenal glands. Those with CAH lack one of the enzymes that the adrenal glands use to produce hormones that regulate metabolism, the immune system, blood pressure, and other essential functions. This can cause a number of symptoms, including accelerated puberty, infertility, and low blood pressure.
The adrenal glands are small glands located on top of each kidney. They produce hormones that you can't live without, including sex hormones and cortisol. Cortisol helps you respond to stress and has many other important functions.
With adrenal gland disorders, your glands make too much or not enough hormones
This news of course was devastating and shocking and actually left me feeling like not going forward with the process. It just seemed like so many hurdles have been in the way and the journey of IVF was just not worth doing. This for me meant more funds that we had to get, more injections and blood work that I have to endure and so much extra stress on the brain. I was totally out... But my partner and his parents came through and supported us huge during that time. They were willing to help us move forward and try!
I have a ton of medication I am taking the total cost is around $4700+ Here are my current lists of medications and I finally start on them tomorrow!
Day 3 is tomorrow, 6am will be monitoring and ultrasound at my fertility clinic. Then tomorrow night 8pm-10pm will be my first injection shot...I hate needles so I am not sure how this will go but there’s no turning back now.